IMGG,SGRH

Duchenne Muscular Dystrophy Awareness

The Institute of Medical Genetics and Genomics, SGRH is excited to announce its collaboration with IIT Kanpur in advancing research and treatment for Duchenne Muscular Dystrophy (DMD). Under the expert guidance of Dr. Jayandharan Giridhara Rao at IIT Kanpur, we have completed promising preclinical studies. At SGRH, we are actively managing a cohort of more than 500 children with DMD, providing comprehensive multidisciplinary care that includes specialized physiotherapy and functional assessments.

"Calling all DMD families! Be part of something transformative. Join our Gene Therapy Research program – it's an opportunity to make a real difference."

Let's work together for hope and progress!

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Heroes of Duchenne Muscular Dystrophy

Hero 1

K. Aditya

I want you to know, even though the road feels long and sometimes overwhelming, you are not alone. Every day is a battle, but it's also a victory. Each small step, no matter how difficult, is a testament to your strength, resilience, and courage.

There are days when my body feels weak, and the tasks that were once easy now take more effort. But I’ve learned to embrace the support of my family, friends, and medical team. They remind me that even in our darkest moments, there is hope, there is progress, and there is a community standing with us.

I want to remind you to celebrate the victories – no matter how small they may seem. The moments of joy, the achievements, and the love that surrounds you are what make the journey worth it.

Remember, each day we fight, each day we keep going, we are making a difference – for ourselves and for everyone who will follow in our footsteps. Stay strong, keep believing, and never lose hope. Together, we can create a future where Duchenne Muscular Dystrophy doesn’t define us.

With all my heart,
A Fellow DMD Warrior.

Hero 2

Daksh

My name is Daksh, and I’m 9 years old. I live in a small town in India, and I have Duchenne Muscular Dystrophy. Some days are hard for me — running, climbing stairs, or even getting up from the floor can feel like a big task. But I want to tell you something important: you are not alone.

Even though I can’t do everything other kids can, I still smile, I still laugh, and I still dream. I go to school, play with my friends in my own way, and enjoy time with my family. My parents, teachers, and doctors help me a lot. They always tell me I’m strong — and I believe them.

Sometimes, I feel a little sad when I get tired quickly or when I can’t keep up. But then I remember that every small thing I do — even standing up or finishing my homework — is a big win for me.

To every kid like me, and to all the families: don’t give up. We are special. We are strong. And we are part of a big family that cares for each other.

One day, there will be a cure. I believe that. Until then, let’s keep going, keep smiling, and keep hoping.

With love–
A DMD Warrior

Hero 6 - Nivit

Nivit

My name is Nivit, and I’m 9 years old. I was diagnosed with Duchenne Muscular Dystrophy when I was just two and a half years old. Since then, every day has been a fight — but it’s also been a journey filled with strength and hope.

DMD may affect my body, but it can never define who I am. I may face challenges doing some things, but that doesn't stop me from learning, growing, and dreaming big.

With the love and support of my doctors, family, and friends, I keep moving forward — one step at a time. I believe that one day, I will overcome every obstacle that comes my way.

I am more than my diagnosis. I am full of energy, curiosity, and aspirations. Living with Duchenne is not easy, but I am determined, hopeful, and brave enough to face it.

With hope and courage,
Nivit

Hero 4 - Pratham

Pratham

My name is Pratham and I am 9 years old. I was diagnosed with Duchenne Muscular Dystrophy when I was 6 years old.

My story began with subtle signs like delayed motor skill development, difficulty running or jumping, and toe walking, which eventually led to my diagnosis around age 6.

My parents have shared the challenges and emotional burdens they face, but also their unwavering dedication to giving me the best possible care and support.

Despite the difficulties, I continue to demonstrate resilience, determination, and a positive outlook on life. Every day is a step forward in courage and hope.

With determination,
Pratham

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